Counting the days
It seems almost impossible, I know, that pretty much all of a year has passed since my Mom died. I managed to save all the entries I'd written during her illness from last year and everyday I check in to see what I wrote, what new horrible thing was happening to her and to see if I had any hint at how short the days were really becoming. Tomorrow will be what I consider the beginning of the very fast slide out of this world for her. She'd already been diagnosed with tumor metastasis to her brain and we'd been doing a week of radiation to her hip for possible bone mets when she seized up in her chair that afternoon during an episode of "M*A*S*H" in front me and my brother Matt and his family. This is what I wrote last year:
"I don't think I can imagine witnessing one single worse acute event other than a grand mal seizure. A full out body-rattling, electrical storm that winds the muscles of the body so tight in constrictures you'd think you could just about hear bones getting ready to crack, not to mention the complete look of utter horror in their face with the eyes rolled back and the mouth drawn up into some wicked, maniacal grimace of what looks to be mind-blowing pain. I've had years of experiences with seizure patients and at first, it's one of those episodes which causes you to lose complete control of yourself and start yelling for someone to do something, anything, just to make it stop. That's the very problem with seizures: they are completely, utterly unstoppable once they start up and there is nothing you can do about it. They run their course and you're left standing by the wayside, watching. In the ER, we'd roll the patient to the side in case they started to vomit so they didn't aspirate and choke and we'd give them some meds, put them on some oxygen which is all secondary symptomatic treatment and not doing anything to limit the seizure time. You just learn to not panic and realize you have to ride out the storm, hard as it may be.
I mention this because, inevitably, my mother experienced the first seizure of her metastatic brain tumors while sitting in her chair watching "M*A*S*H" yesterday afternoon. Her leg started kicking uncontrollably which she had just started to mention to me and to which I immediately knew what it was before it washed over her totally, causing her first to clutch her chest and scream the most harrowing shriek you hope never to hear anyone ever let loose and then went complete rigid with that horrific grimace of shear fright. She did the whole deal, turning blue by the end of the thing from her inability to breath and literally, all I could do was sit there and hold her hand and wait for it to be done. I hadn't done that kind of seizure care in a long time, but it was the calmness of just holding her hand, calling, "Mom, we're here" just sort of popped out of nowhere. Of course I had that voice screaming in my head to do something, ANYTHING, but I also had this really strange, calm voice put its hand on my shoulder and say, "if this is it, then it's ok" and that felt alright too. Unfortunately, my youngest brother and his wife and two little boys had just stopped over right before this whole thing launched into orbit and there isn't anything like trying to be available to a room full of people all at once. My brother, God's most gentle, soft-hearted, soulful dad ever, thought that Hell itself had just erupted in the middle of the living room and was dragging Mom away in front of him. I know he and his beautiful wife will never forget that image for the rest of their days and that's a sorrowful thing added to the bank of misfortune that clouds their lives anyway.
I say all this for this reason; I know anyone and everyone who's following this whole thing has been thinking and praying and hoping for whatever is appropriate to hope for in this situation. I'm telling this to show the story moves on. This is where we are now and we move forward, quicker than I thought. It's hard to explain but my new mantra for each day, to make each day count is "time grows short" and I can manage with that.
As it turns out, we had less than two weeks left which even then and now looking back was a blessing. She was literally well and walking one week, wheel-chair bound the next and dead two weeks later. That's a slicked down slide if I've ever heard one. By this time last year, I'd already painted her bedroom a strangely comforting but saddenly infuriating shade of lilac and lavender. I'd scrubbed her floors by hand with a brush almost every day and I'd baked what was probably my 15th or 16th loaf of bread because I was so powerless to do anything else.
It's a cliché to say how the time has flown over the last year but I can say, more truthfully than ever before, that's exactly the whole of it. The days simply melted away without her and now we're circling her death's year-anniversary. It's been a year that has been gearing up for me to get back up and start doing again so that's what I'm into. Her estate is coming to a close, finally, and her grave stone is ordered and should be ready in May and those were the last things I'd been holding onto not really wanting to let them go but knowing sometimes, you just have to call it a day and make do. And there is some REALLY good family news coming down the pike which makes the timing seem on the sweeter end but still bittersweet, none-the-less along with the day to day fizz of all of us waking up and shaking off the long, cold winter. Spring is coming, things get green, the world turns like always.

WHEN YOU WRITE..........IT MAKES EVERYTHING SO REAL. TONIGHT, FRIED GREEN TOMATOES IS ON TV.. THE FIRST AND LAST MOVIE THAT WE WENT TO.
IT SEEMS THAT I AM REMEMBERING ALL THE THINGS THAT MADE AMBER, AMBER. OH..GOD I MISS HER SO.
BEAU... WHAT A GOOD SON YOU ARE, NO ONE COULD HAVE TAKEN BETTER CARE OF HER. I KNOW HOW MUCH YOU MISS HER. IT ALWAYS SEEMS LIKE IT WAS A DREAM. AND SHE'LL CALL ME ANY MINUTE.
MY BEST TO YOU AND JEFF.
i think i said it last year, but that passage is especially painful and real for me. i've watched my sister go through 2 gran mal seizures...you're desription and emotions are spot-on with what i know to be true. thank you again, beau, for posting it.
i hope that the promise of spring is not lost on you. i suspect it is not.
xxoo,
JOHN
I can still scarcely grasp the finality of it all. I read your words again, they are incredibly painful, they burn like a hot knife, like they did last year. Is it really a year? I hate it when some things are not now and never will be quite the same. And for all it is to me, it must be many times worse for you and your brothers.
No sons could have been more caring, more supportive, more loving than the G boys were in those final months, those final days. None of you or your partners ever quit, ever flinched from the difficult challenges. It is a small comfort I know, but it is a magnificent legacy and an incomparable parting gift you all gave her. She deserved every bit of it.
This has me in tears, just like it did a year ago. What is it about the last line, that makes me cry harder?
I adore you, Beau. As I was eating noodles from L'Annam last night, I thought of you (without having even visited your site yet) and toasted you silently. Now I know why. :-*
Hi Beau, this is Annie from Mexico, Amber's friend. I've been thinking about your Mom a lot lately, and about you guys. I hope you're all doing good. I heard Nichole had another baby boy, besides Mason and Reece. He most be a beauty too. How are Mitch and Sarah doing? And Rob? I wish I live closer to visit them once in a while. Please say hi if you ever talk to them... I miss Amber a lot, she was a friend like no one else.
I also miss her very much. Love to all of you from one more bawl bag.
I also miss her very much. Love to all of you from one more bawl bag.